We had the appointment with the bowel surgeon a week last Thursday. After a few mmm's and arh's and advising W it would be close to 6 months from the op before they would reverse the Ileostomy, they agreed to put W on to the emergency waiting list. Brilliant, a light at the end of this tunnel we have found ourselves in!
W had to call the surgeons secretary 2 weeks later, he called a week later. Gutted, the waiting list is at least 6 months long from now, W was so upset when he called me at work. This means the fantastic holiday he has booked will be ruined, all of these years of living in the wrong body and now this to stop him from living life, I feel so sorry for him.
W's mood just got darker, he is feeling quite aggressive anyway and I am fed up of him biting my head off.
The Dr had already suggested that he could increase his citalopram, he has decided against it as he was so close to been off it completely just before this emergency, this would be another set back.
I suggested that he called his stoma nurse as surely he is classed as an emergency as he is feeling very depressed and that concerns me. W called the secretary again and expressed how this was affecting his whole life, his job and training are been affected, he is unable to go out for long periods of time, the constant alarm setting throughout the night and then he has to get up early to go to work and do the agreed 2 hour phased return to work he is absolutely shattered; this should have been increased after half term but W is still not eating whilst out, as he finds it very embarrassing due to the noises it makes and the constant filling up after, it's a long day with no food and drink.
W was referred to a counsellor, but like everything else there's a pathetic long waiting list and no dietician insight!
We are discussing whether or not to go down the private route, not sure how we would pay or even any idea to a cost.
There may be a fund raising plan on the horizon!
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